June 6th, 2011

just one of those days

The last two days I’ve been housebound. Not feeling well and sore where I had my surgery, so I stayed in, mostly in bed. I’m a bit underdeveloped when it comes to the ability to do nothing, and even reading hasn’t been alluring, although I have been reading a bit on the chronic stress related damage to the limbic system.

Still no poetry. And I feel the lack of it. I also haven’t attended to the page in the last two days either. Someone I know says that if he skips more than a day of exercise he feels it as a need, a desire to move and pull against gravity.  I feel the same kind of thing I think, but for me it is the pull that words can exert when one tries to torque them in the pursuit of some hidden understanding lurking across the threshold of a word’s intelligibility.

Anyway, I have doctor appointments tomorrow so part of the day will be a rest break at a coffee shop so have baby-computer will write. Right now, I’m just going to try and sleep and let go of the idea that I did nothing all day and that this a was bad thing, a really, really bad thing to do – which part of me insists is so.

Courtesy of one of my hospital visitors, Mary’s pee and Mary’s blood.

Imagine for a moment being hooked up from toe to scalp with machines like this; tubes dangling from various artificial and natural orifices. Welcome to life as a cyborg. Boggle, boggle.

eeeew photos below the fold

For the last two years or so I’ve been in pain and now, two weeks post surgery, the pain has become noticeable by virtue of its absence.

Pre-surgery I would have said that there were times when I was not in pain, but now that I actually remember what being pain-free feels like, what was true is that there were times in the past two years when the pain just formed the background. One the scale of one to ten, my pain never really went below a “two.” I just got so used to it that it no longer registered as pain.

The thing about that is that my body knew better than my consciousness. I recognize that now, not only because I am actually pain free, but because suddenly a whole raft of behaviours no longer have any appeal.

Just one example: TV. I don’t actually own a TV but I do have the internet and so I can watch some shows online. For the last couple of years I have watched a whole range of dramas, mostly crime dramas. I would go to work and come home exhausted. On days when I didn’t have to go straight to bed (when the pain got above a “five” on the ten-point scale), or couldn’t read (need energy to think), I watched TV or other vids on the internet. When I came home from the hospital this last time, I couldn’t leave the house and I wasn’t yet mentally composed enough to read, so I started to watch one of the shows I hadn’t seen yet. And I couldn’t do it.

I started to watch it but the cruelty of it, the crime component of the drama, was suddenly so obvious, so egregious, that I couldn’t bear to attend to it. It turned out that nearly everything I watched so assiduously pre-surgery struck me the same way. I erased it all.

Depictions of human cruelty and their punishment was how I handled chronic pain. There is something very important about that, I think.

It made me wonder about other behaviours of mine and other situations that are painful, even if in a more emotional sense than the physicality of my recent distress. It occurs to me to question myself about how I was able to sustain myself in a job I loathed. What things did I do to make that cruelty possible? Were the crime dramas part of that pain? What about tolerating someone who speaks garbage and does it continuously? How do I make it possible to tolerate that person? Perhaps more importantly, why do I do it?

Partly I compensate for pain because sometimes pain is simply unavoidable and pain is something for which there is always a cost that must be paid. Socially, for example, one must follow politeness codes if one wants politeness codes applied to one’s own existence. So I don’t scream “shut the fuck up” because I don’t want to be screamed at by someone else. That seems to me to be a sensible give-and-take and worth the cost of ignoring a boor or a fool. But there is a difference between that and the continual coping-behaviours that become habit, especially when the pain is actually optional.

Now my physical pain wasn’t an option easily fixed, but other sorts are. I could have, for example, quit that job far sooner than I did. I could avoid people with verbal diarrhea more than I do. I could pay more attention to the ease and resilience my body craves and be more discerning about situations that require greater than average attention to politeness codes.

The thing about chronic pain, whether physical or emotional, is that coping with it seems to undermine one’s capacity to see past it, and therefore to get out from under the situation causing it. Nasty that.

The thing about being pain free is that I rather like it. In fact I like it so much that I might try to cultivate a kind of psychic pain free state more often now that I am physically pain free. Good idea don’t you think? I do think that achieving such a goal is going to require me to pay attention to how I behave and why. That might be a bit difficult, but it will probably have interesting results and so be worth the effort. Yes. Worth a try anyway.

May 25th, 2011

days on wheels

I’m not in much pain now, there is no suffering to speak of and so nothing to slow down the smooth rush of the day as it moves with the sun from horizon to horizon. I sleep a lot. I wake refreshed but like surfacing from a cool lake into hot air, it doesn’t last long. I tire easily. But I don’t feel bad.

In fact, each day my little walks in my neighbourhood feel a bit easier and certainly the lilacs and mock oranges in my neighbour’s yards make things much more pleasant than they were in the hospital. I sit outside to drink my coffee and to just feel the air move, but it has taken all morning to get me to the place where I can do that. I move so slowly that to make a cup of coffee is the work of nearly an hour.

But without pain, and without the emotional intensity suffering brings, the day moves smoothly, it’s just that nothing much (apart from living) gets accomplished. Yesterday, to get around my horror at my own lack of daily “accomplishment”, I had to promise myself that my only requirement for this week was to get to next Monday. That’s it. Just survive without damaging myself further. If I can do so it will be a big achievement, although I know I won’t feel that way. I’ll still feel as if I’ve done nothing.

Normally, I don’t mind days like these, ones that just slide quickly by. I sit at a coffee shop and attend to what is around me. But it’s that attention that slows the day and makes it stop and look back at me, even if its only a moment, and only a brief look. I notice things in that moment and if I write about them, they perk up their ears, swivel them my way. Do you think of the “day” like that? Like a horse, or trotting dog that normally just moves about its business without noticing you at all? Whistle to it, attend to its flanks, to its moving grace, and sometimes you can connect, the day and you.

I suppose these post-operative days are different because I am still so weak and my mind has yet to kick into gear so my attention is thin and, like old velcro, no longer clingy. At least what’s true is that unlike old velcro, my capacity to pay attention will be washed clean by sleep  and more days of healing. So here’s to the day when time moves between the world’s edges with a horse’s interactive grace instead of with the smooth power of a car speeding away.

May 23rd, 2011

hospital bits

A kind friend and his very cool little girl brought me these flowers and came to visit me while I was in the hospital. I had a pretty good view out the window from my bed and I would stare out at the day and night for hours at a time. Since the flowers found a place on the window sill, these guys (now by my bed) allowed my eye a coloured road on which to travel out into the world. It was such a wonderful pleasure.

Thank you very much guys.

May 23rd, 2011

hospital bits

Part of my of my post-operative regimen was (what turned out to be) 5 days of “bed rest.” That means, given the kind of surgery I had, I was flat on my back, or, at best, my upper body was raised about 45º. I am side-sleeper, and have benign positional vertigo and cannot abide having my head completely back. It was pretty miserable.

I don’t remember much about the first 2 days except constant nausea and pain. I cannot tolerate narcotic pain killers at all well, and to take them requires the constant application of anti-emetics. So as soon as I was coherent enough to say “no” I stopped getting pain meds and started asking for Tylenol to kill the post-morphine headache that I get for 2 to  3 days. All this time I’m battling the desire to swing my legs over the edge of the bed and sit up.

I would have regretted it of course—the sitting I mean—so I didn’t do it, but OMG I so wanted to get my head upright.

Then came the day I got to stand for the first time. Not via sitting, but via what is called a tilt-table. Essentially, you move over to a table that has a foot plate and it slowly moves you upright. There were 2 physiotherapists there to help me and they say I did wonderfully (I took a few steps the first time) but I was crying by the time it was over. The nausea was so bad I didn’t think they’d get me the IV drug fast enough to prevent very, very painful retching. They did though.

They came back the next day and I walked twice as far with no nausea and only some pain.

The next day I was allowed to sit for the first time. That turned everything around. By the end of the day I was able to walk around the ward (a distance of 250M).

The body is such an amazing thing. Only 5 days down and all I could manage were a few paltry steps with enormous effort and at enormous cost, but with just a little encouragement—just a very little really—and I improved so rapidly that put into statistical terms, it would look impossible.

There’s a lesson in that somewhere, I think.

May 20th, 2011

Update

So my surgery was 5 days ago and today I got to sit for the first time. Who knew it could be so painful? And walking so strenuous!

My normal temper and desire to read has returned so you can be sure that I am on the mend. I don’t expect that I will be home until next week so I won’t be posting regularly until after that. Just wanted you to know I lived.

Boy, the stories that live here!

May 14th, 2011

update

I feel a bit like I’m on one of those log rides, just pulling away from the departure bay and yet to face that long pull up the steep slope, all for the dubious pleasure of a rush down into fear. Never liked horror movies. Never liked rides either.

Anyway, I do trust the people here at the hospital, and I know they will do everything they can to control the pain and nausea that is coming my way, but I also know they will not be able to stop it all. Yech. I am so not looking forward to this next couple of weeks.

All this is to say I go into surgery today or tomorrow (depends on whether some person gets them selves a bullet hole or an awful open wound and bumps me down the list). I’ll post when I can.

May 6th, 2011

as you may have guessed

I have been back in the hospital. Got out about an hour ago. Feel better but not great.

My great insight: pain and nausea suck.

May 2nd, 2011

ooops

So about 2 hours after I posted yesterday, I noticed my eyes were really sore and I was having a hard time focusing. My headache was back and I was starting to feel nauseas. So I went home and by 16:30 things were bad and I was moving between the bathroom and my bed. Bleh.

Does it matter that I mixed up a magnolia and a gardenia?

I suppose I have a touch of concussion from banging my head.

I did have good dreams last night, and I woke thinking I can write the book of poetry now. I do feel considerably better today, so on with Stumbling on Happiness, and when that is finished a few other books that have been hanging out waiting for me to get back to them. And all the while, I’m going to be thinking about poetry.

Yeah for freedom!